If you get a chance, take a look at this website about a guy with VCFS or DiGeorge Syndrome as its also called. My daughter Dolly has this syndrome and it impacts heavily onto her everyday life. Apprarently, although few people have heard of VCFS it is the 2nd most common syndrome after Downes Sydrome. Maxappeal is the UK support group for children with DiGeorge syndrome, called after its founder who lost her young son Max, as a baby, to complications related to this syndrome
http://www.friendsofquinn.com/
www.maxappeal.org.uk
No comments:
Post a Comment