We just got back from Alder hey Hospital yesterday after Dolly`s latest palate surgery. As you probably may know, Dolly, one of my 6 year old twins, has VCFS, (DiGeorge Syndrome) and has very little speech due to a very short palate, which also has a repaired cleft.
Unfortunately, I don't think the operation has been a great success. When the plastic surgeon was operation, he found Dolly`s tonsils were huge - which meant he couldn't do the work he wanted to do. He did extend the palate a bit, which he said would be good ground work for future operations. FUTURE OPERATIONS! I had hoped that would be that after this operation!!!!!!Oh well. We`ll just have to wait and see. Perhaps in a few weeks there`ll be more improvement than I first thought.
I`ll keep up posted.
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