Happy Halloween

New Liverpool Website

Have you heard about the new website for the Merseyside area Liverpool.Com.?
Its well worth a look if you`ve got the time.
http://liverpool.com
Theres even some competetions.

Max Appeal Conference for VCFS/DiGeorge

We were off to Leicester at the weekend to the annual Max Appeal Conference. This is the support group for DiGeorge Syndrome/VCFS - the condition which my little daughter, Evie, suffers from. It was based in the National Space Centre, which was wonderful. We slept in a Travel Lodge a few miles away but travelled up the morning of the conference, which meant a 6.00am start. There`s some nice countryside round there though and I would have liked to look round a bit more.

The MaxAppeal conference was well organised as always, right down to Parking Permits to food and drinks supplied all day. In the lunch break, a man dressed as an astronaught brought presents for all the kids - although Evie was terrified of him, she loved her present ( a toy sewing machine that really sews). Usually, Father Christmas comes, but the meeting is usually held in December. She`s terrified of him too! LOL.
Anyway - theres were doctors and a variety of experts in DiGeorge Syndrome giving lectures and advice. All very helpful - and it was good to meet other families going through the same sort of thing as ourselves. We even had a little dance at the end of the day at the party with the kids. Yawn! Shattered now though. Cant wait to get into my lovely bed - the Travel Lodge bed felt like I was sleeping on a giant shredded wheat.

The twins have reviews

Well, the main news is that both of my twin girls have had reviews of sorts. Dolly had her review with the Plastic Surgeon at Alder Hey, which wasnt much in the way of good news. The surgeon basically told us that Dolly has a paralysed palate which is why her palate operations aren`t successful; then told us to come back in a year. 
Luckily, the speech therapsit who was also present, suggested to him that 6 months might be more appropriate. Oh well. Looks like we`re in for more speech therapy which probably wont do much good.

Molly, on the other hand, had a good review with the educational psycologist. He said that she was very bright and more than likely wasnt dyslexic. Yey! It was like a weight off my mind. He said it was probably a maturity thing - she was 10 weeks premature after all, and everthing would click into place sooner or later. I so hope this is right!

Other news - we went to wales at the weekend. Colwyn Bay. It was lovely, and we collected loads of nuts and pine cones for the kids and had a gorgeous lunch of roast lamb. MMMmmmmm. Delish!

Next weekend we go to Leicester for the DiGeorge Conference. shoould be interesting. We`ve got a room booked in a local Travel Lodge, and after the conference, theres going to be a party that evening. Looking forward to this.
Tomorrow, I find out what my project is going to be in my Web Design Class. Should be interesting.
I probaby wont be able to get back on here before next week, so see you next week.

My Web Design Class

Wednesday - the day for my web design class in a local woman`s technology college. 

Today we did inserting images which was a bit tricky - most of us had a bit of a problem with it, but think I got the hang of it eventually. Cant wait to get the hang of HTML properly.

So, kids in bed at last. Feet up and telly on. Waiting to watch "Who do you think you are" Its David Dickinson tonight. And, we`re watching on our new LCD television that just arrived yesterday. Its lovely, but takes a bit of getting used to as we`re not used to the wide screen format. Not complaining though

!
Just doing a few competitions - ever optimistic, just done one for £10,000 with Panosonic. Fingers crossed